Being happy doesn't
mean everything
is perfect,
it means
you have decided to
look
beyond the imperfections.

Links

Adaptive Sports, Resources, durable medical supplies and stuff

American Association of Adapted Sports Programs - Atlanta, Georgia (USA)
AAASP's mission is to develop and support a standardized structure for school-based athletic competition to improve the well being of students with physical disabilities.

United States Adaptive Recreation Center (USARC) - Big Bear Lake, California (USA)
Using the best adaptive equipment (Mono-skis, bi-skis and outriggers) and teaching techniques available, participants experience the freedom of gliding down the mountain and recreating with their families and friends. These experiences often result in increased self-confidence and greater success in academic, professional and personal life challenges.

Rocburn Limted - (UK) They offer a range of electric window openers, single chain openers, twin chain openers for larger windows requiring two push points. and linear actuators for rooflites and large heavy windows.

Argus Service Dogs - Argus trains service dogs that are matched with disabled veterans and other disabled populations. The dogs are highly trained to assist the veteran to perform complex tasks of daily living such as retrieving objects, opening doors and navigating in public. Argus is in large part about vets helping vets. To this end it is our plan to establish a vocational program for veterans, to recruit and teach veterans to become certified service dog trainers. As part of this plan veterans will be taught to train service dogs and work closely with their disabled veteran brethren who receive them.

K cushions - K cushions is ready to deliver innovative soft unique stackable one of a kind designs made for both round and elongated toilet seats. A foam density to provide the user relief for extended stays while on the toilet and allow access with a cutout. Make it simple, lightweight and easy to travel with. Protect users from pressure sores and give users an extra rise for easier transfers.

 

ALS - Amyotrophic Lateral Sclerosis

(ALS) Amyotrophic lateral sclerosis

ALS Associates - Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

ALS Therapy Development Institute - Their mission is to discover, develop and deliver effective treatments that slow and stop ALS. To do so, they built the world's first brick-and-mortar "nonprofit biotech". Inspired and led by patients today, they are guided by the values of openness, truth and entrepreneurship in their mission to end ALS.

The ALS Society of Canada - The mission of the ALS Society of Canada is to fund research towards a cure for ALS and support provincial ALS Societies to provide quality care for those affected by ALS.

The Blazeman Foundation - The mission of Blazeman Foundation for ALS is to: 1.) raise awareness about ALS by leveraging the energy and compassion of the multi-sport community and 2.) raise funds to find a cure for ALS...So Others May Live.

The ALS Association Arizona Chapter - The ALS Association (National Office and the Arizona Chapter) operates under a shared mission: to help people living with Amyotrophic Lateral Sclerosis and to leave no stone unturned in search for the cure.

The ALS Association Ohio Chapter - The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA covers all the bases — research, patient and community services, public education, and advocacy — in providing help and hope to those facing the disease

The ALS Association Massachusetts Chapter - The Massachusetts Chapter of the ALS Association was founded on January 27, 1990, to serve the needs of those living with Amyotrophic Lateral Sclerosis and their caregivers. We offer free services for patients and their families, including respite care, equipment loan, a children's program and support groups.

The ALS Association Greater Philadelphia Chapter - is to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

ALS Association New York Chapter - The ALS Association's mission is to lead the fight to cure and treat ALS through global, cutting-edge research and to empower people with Lou Gehrig's disease and their families to live fuller lives by providing them with compassionate care and support

ALS Therapy Alliance - Our Researching a Cure Campaign had a successful 10th year in 2011. A decade's worth of great strides has been made in leading-edge research to find a cure for this devastating and fatal disease known as amyotrophic lateral sclerosis (ALS) or Lou Gehrig's Disease.

E-triloquist - a PC-based communication aid for a speech impaired person. It serves as an electronic voice for those who can't speak on their own. the personal computer augmentative communication aid software formerly known as "SpeakEasy", developed as a family project. Dad had amyotrophic lateral sclerosis (ALS) and lost his ability to speak in the course of the disease. Son is particularly versatile in personal computers. Our first version (named "SpeakEasy" at the time) was made available on the Internet in early 1995. We are now on Version 6.3 with even more new features suggested by current users of the program, and with full support for Windows-XP, Vista, and Windows-7 operating systems.

Rockin for a Cure - ROCKIN FOR A CURE is the dream of Steve Weekes, who came up with the idea while in the waiting room of an ALS clinic with his brother John, and sister, Monica. Shortly after his diagnosis, Steve began work on the project and enlisted the help of long-time friends from Wall of Sound and the Madison Scouts Drum and Bugle Corps.

The ALS Society of British Columbia - The ALS Society of BC is dedicated to providing direct support to ALS patients, along with their families and caregivers, to ensure the best quality of life possible while living with ALS. Through assisting research, we are committed to find the cause of, and cure for Amyotrophic Lateral Sclerosis (ALS).

Health Library: Amyotrophic Lateral Sclerosis (ALS) - Additional Information on ALS

 

AS - Asperger Syndrome

(AS) Asperger Syndrome

Asperger Syndrome Information and Support (OASIS)
Founded in 1984, MAAP Services, adheres to the basic principal that all individuals with autism spectrum challenges have the ability to learn, grow and enjoy a good quality of life.

Autism Spectrum Disorders Education Network (ASPEN) - Edison, NJ (USA)
ASPEN provides families and individuals whose lives are affected by Autism Spectrum Disorders (Asperger Syndrome, Pervasive Developmental Disorder-NOS, High Functioning Autism), and Nonverbal Learning Disabilities.

Asperger Center for Education - NY, New York (USA)
The center provides trained coaches for students attending colleges in the New York City area.

Asperger Support Network - Eugene, Oregon (USA)
Asperger Support Network, where individuals, families, and professionals can access specialized training.

 

Autism Support Network - Fairfield, CT (USA)
Their goal is to short-cut the uphill battle individuals and families undertake when faced with autism

ADHD - Attention-Deficit Hyperactivity Disorder (at·ten·tion def·i·cit dis·or·der)

(ADHD) Attention Deficit Hyperactivity Disorder

Attention Deficit Disorder Association
The Attention Deficit Disorder Association provides information, resources and networking opportunities to help adults with Attention Deficit Hyperactivity Disorder lead better lives.

CHADD
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) was founded in 1987 in response to the frustration and sense of isolation experienced by parents and their children with ADHD. At that time, one could turn to very few places for support or information

 
 
 

ASD - Autism Spectrum Disorders

(ASD) Autism Spectrum Disorders

California Autism Foundation - Richmond, California (USA)
The mission of the California Autism Foundation is to provide people with autism and other developmental disabilities the best possible opportunities for lifetime support, training and assistance in helping them reach their highest potential for independence, productivity and fulfillment.

HALO (Helping Autism through Learning and Outreach) - Austin, Texas (USA)
Helping Autism Through Learning and Outreach is a non-profit organization supported by parents and professionals nationwide who are dedicated to the use of Soma® Mukhopadhyay's Rapid Prompting Method for improving academic success and communication for persons with autism and similar disorders.

The Autism Society - Bethesda, Maryland (USA)
The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy

National Autism Association - Attleboro Falls, Massachusett (USA)
The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential.

Global Autism Collaboration - San Diego, CA (USA)
Our mission is to network and collaborate with Autism organizations worldwide to generate necessary political, legal, and social change to deal with to global autism health crisis.

AutismOne- Chicago, Ill (USA)
AutismOne’s mission is to lead the effort in educating parents, professionals, and the public about the care, treatment, recovery and prevention of autism and related disorders by making critical information available through new channels as well as traditional ones. AutismOne is a nonprofit, charity organization 501(c)(3).

Autism Research Institute - San Diego, California (USA)
The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism. ARI also disseminates research findings to parents and others worldwide seeking help. The ARI data bank, the world's largest, contains over 40,000 detailed case histories of autistic children from over 60 countries. ARI publishes the Autism Research Review International, a quarterly newsletter covering biomedical and educational advances in autism research.

Autism Today - Sherwood Park, Alberta (Canada)
In 1996 Karen Simmons (author, keynote speaker, and businesswoman in autism-related endeavors) had a vision to simplify the information gathering and evaluating process for families dealing with Autism Spectrum Disorders… and Autism Today was the outcome. Autism Today receives over 2 million hits a month which consists of 55,000 unique visitors and 25,000 members. They are from all walks of life, both urban and rural virtually from around the entire planet! These numbers confirm not only that the need for information is vast but also that the information we provide is relevant to the worldwide community! With our broad database of highly interactive members, we are an excellent established vehicle to conduct surveys and find interested participants for research projects and educational training.

Kat's Cafe - Voorhees, New Jersey (USA)
Kat was diagnosed with autism at age 2 1/2 in 1989. Today Kat is 24 years old. Her struggles and triumphs have impacted many people and especially her family and friends. We have created this page to share our story with everyone, with a hope that it will inspire others to help their child with autism.

Center for Autism - Tarzana, California (USA)
The Center for Autism and Related Disorders, Inc., (CARD) has earned a reputation as one of the world’s largest and most experienced organizations effectively treating children with autism, Asperger’s syndrome, PDD-NOS, and related disorders. Following the principles of applied behavior analysis (ABA), we develop individualized treatment plans for your child. We are proud to provide autism services around the globe.

Clearing the Fog About Autism (CFAA) - Atlanta, Georgia (USA)
Clearing the Fog About Autism (CFAA) is to serve the needs of children who suffer from Autism Spectrum Disorder by providing them with an opportunity to reach their full potential. CFAA enables children to receive therapies that have proven to be effective, but are not covered by the health care industry. We create community awareness about this growing epidemic. CFAA advocates for early detection and early intervention. We also teach families how to detect autistic traits and provide information about steps to take after a diagnosis. Parents are educated about treatment options that can potentially make the difference in their child’s development.

 

CP - Cerebral Palsy

(CP) Cerebral palsy

United Cerebral Palsy (UCP) was founded more than 60 years ago – in 1949 – by parents of children with cerebral palsy. Today, UCP is a leading service provider and advocate for children and adults with disabilities. Since its inception, UCP has been committed to change and progress for persons with disabilities and strives to ensure the inclusion into every facet of society – from the web to the workplace, from the classroom to the community – to ensure a life without limits for people with disabilities.

MyChild - provides an ever expanding network of resources on cerebral palsy, special education, assistive technology, benefits and funding sources, support groups, community services, and government programs, just to name a few. We also strongly encourage you to dial our toll-free number, 1-800-692-4453 or fill in our online inquiry form to reach our dedicated team of experienced MyChild call center representatives

Cerebral Palsy (Legal) Help - Sheldon O. Zisook, president and founder of the firm, has a child who was born with cerebral palsy. He understands what it means to care for a handicapped child. Subsequently, he became one of the largest birth trauma attorneys in the country. You should find this web site very helpful.

American Academy for Cerebral Palsy - Provides multidisciplinary scientific education for health professionals and promote excellence in research and services for the benefit of people with cerebral palsy and childhood-onset disabilities.

 
 

CF - Cystic Fibrosis

(CF) Cystic fibrosis

Cystic Fibrosis Foundation - The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

Cystic Fibrosis dot com - is a social health community, founded in 1996 at the dawn of the Internet and the rise of the e-patient — the electronic or empowered patient. We are a source of information, hope, and encouragement for patients and families affected by CF.

 

DM - Diabetes Mellitus

DS - Down's Syndrome

(DS) Down's syndrome

National Down Syndrome Congress (USA)
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

Down Syndrome Alabama - Birmingham, Alabama (USA)
PADS is a non-profit organization in Central Alabama dedicated to promote awareness & acceptance of, and advocacy for individuals with Down syndrome. PADS offers education & support programs for individuals, their families, caretakers, educators, medical professionals,   service providers and the communities where they reside.

Down Syndrome Society of Mobile County - Mobile, Alabama (USA)
Their mission is to provide enrichment through education, networking opportunities, advocacy, and emotional support for individuals with Down syndrome, their families and the greater community.

Down Syndrome Connection of Northwest Arkansas - Springdale, Arkansas (USA)
Down Syndrome Connection of NWA is a support group designed to connect those touched by Down syndrome living in or around Northwest Arkansas. They have monthly meetings for educational & fellowship purposes. They also provide educational and supportive literature, parent-to-parent support, and other resources.

Sharing Down Syndrome Arizona - Gilbert, Arizona (USA)
The vision of Sharing Down Syndrome Arizona is to provide a world with equal rights and opportunities for all people who have Down syndrome.

Down Syndrome Network AZ - Phoenix, Arizona (USA)
Their mission at DS Network is to educate, support and advocate for those in Phoenix, Arizona's community impacted by Down syndrome. DS Network will achieve this goal through an open, supportive and collaborative network that will connect individuals and families with needed resources and information.

Down Syndrome Assoc. of Riverside County West - Corona, California (USA)
Being the Mother of a child with Down syndrome is a wonderful, rewarding experience! A few of us Moms got together to celebrate our first Annual Mother's Day Lunch in May

Down Syndrome Assoc. of Orange County - Costa Mesa , California (USA)
Their mission is to provide the means necessary to empower individuals with Down syndrome to reach their full potential.

Down Syndrome Connection of the Bay Area - Danville, California (USA)
Their mission is to promote the unique contributions of children and adults with Down syndrome by providing direct services to them and their families, and to educate the general public by fostering inclusive and integrated involvement with the Down syndrome community and society at large.

Down Syndrome Assoc. of Central California - Fresno, California (USA)
The mission of Down Syndrome Association of Central California, aka DSACC, is to enhance the quality of life for all people whose lives are touched by Down syndrome. The goal of the organization is to provide programs that promote greater awareness of the developmental, educational, and social potential of people with Down syndrome. In particular, these programs benefit people with Down syndrome, their family members, and the social science, education, and medical professionals who support them. We serve people with Down syndrome and their families, healthcare providers, and educators. Our catchments area includes six counties: Fresno, Kings, Tulare, Madera, Mariposa and Merced.

The Down Syndrome Assoc. of Hemet - Hemet, California (USA)
Their mission is to promote public awareness, provide parent advocacy and support for families who have individuals born with Down Syndrome.

Down Syndrome Assoc. of Los Angeles - Los Angeles, California (USA)
Their mission statement - To enhance the welfare of people with Down syndrome and their families through the development and promotion of education, counseling, employment and recreational programs. To increase public awareness, understanding and acceptance of Down syndrome

Down Syndrome Foundation of Orange County - Newport Beach, California (USA)
Down Syndrome Foundation developed a detailed parent education program in Orange County designed to help parents of children with Down syndrome navigate the first five years of their child’s life. Down Syndrome Association of Orange County (DSAOC) continues to implement this program, providing new parents with a detailed Orange County-specific orientation guide, support, and a resource center located in its office in Costa Mesa, California.

Down Syndrome Information Alliance - Sacramento, California (USA)
The Down Syndrome Information Alliance provides support and resources to empower those affected by Down syndrome in our community to improve their knowledge and quality of life

Down Syndrome Assoc. of San Diego - San Diego, California (USA)
Their mission is to enhance the quality of life for people with Down syndrome and their families through education, social and support programs.

Down Syndrome Assoc. of San Diego - San Diego, California (USA)
Their mission is to enhance the quality of life for people with Down syndrome and their families through education, social and support programs.

DS Action - San Diego, California (USA)
Their mission is to identify continuing needs of individuals with Down syndrome (DS), and create exploratory projects to meet those needs.

Parents Helping Parents Silicon Valley Down Syndrome Network - Santa Clara, California (USA)
PHP’s mission is to help children and adults with special needs receive the support and services they need to reach their full potential by providing information, training, and resources to build strong families and improve systems of care.

Sonoma County Down Syndrome Support - Santa Rosa, CA (USA)
an Affiliate Group of the National Down Syndrome Society. All of us in the group are parents, grandparents, or family members of a child with Down syndrome.

The Arc Solano - Vallejo, California (USA)
"The mission of The Arc-Solano is to promote the greatest personal growth, community understanding, and full participation of people with developmental disabilities and their families through support, education, and advocacy."

Colorado Springs Down Syndrome Assoc. - Colorado Springs, Colorado (USA)
CSDSA is a volunteer group of families with children who have Down syndrome, as well as people interested in helping us in our endeavor to inform and remain updated on Down syndrome. We are a non-profit organization, established as a family interaction group. We come together to exchange ideas and stories.

Mile High Down Syndrome Assoc. - Denver. Colorado (USA)
Mission of Mile High Down Syndrome Association is to assure inclusion and enhance independence of people with Down syndrome. Achieves this by providing education, resources and support in partnership with individuals, families, professionals, and the community.

Connecticut Down Syndrome Congress - Meridien, Connecticut (USA)
The Connecticut Down Syndrome Congress was formed in May 1986 as a special interest group to advocate for persons with Down syndrome in the state of Connecticut.

Gold Coast Down Syndrome Organization - Boca Raton, Florida (USA)
Our mission is to be a proactive, dynamic support group to all people who have Down syndrome and their families.

Manasota BUDS - Bradenton, Florida (USA)
Manasota BUDS is an all-volunteer non-profit organization that provides programs, services, and support to individuals with Down syndrome and their Families in Sarasota and Manatee Counties in Florida.  Our mission is to provide families with a neutral and supportive forum for sharing and networking, and to promote understanding and acceptance of Down syndrome. Membership is free and our programs and services are free to members.

Down Syndrome Assoc. of Jacksonville - Jacksonville, Florida (USA)
The Down Syndrome Association of Jacksonville (DSAJ) is a non-profit organization committed to helping people with Down syndrome achieve their full potential and to helping create a community that is educated, supportive, and inclusive of individuals with Down syndrome.

Down Syndrome Assoc. of Central Florida - Winter Park, Florida (USA)
The Down Syndrome Association of Central Florida is a not-for-profit association, founded in 1991, by parents of children with Down syndrome. It has grown from a few families to over 7,000 individuals, families and supporters. They are governed by a volunteer board of directors (more than 50% have a family member with Down syndrome.) They serve more than 700 families in the 7-county area in and around Orlando.

Down Syndrome Foundation of Florida - Orlando, Florida (USA)
The mission of DSFF is to empower lives for a brighter future by facilitating projects that enhance the welfare, education, health, and artistic and athletic abilities of individuals with Down syndrome. 

Fun Coast Down Syndrome Association - Palm Coast, Florida (USA)
The Fun Coast Down Syndrome Association was started in October of 2002 by Paula Wilburn in an effort to provide services and support to families in Flagler and Volusia counties. Most of us are parents, but we are also grandparents, friends, and professionals. We encourage and support families by offering services and advocating for people with Down syndrome.

Broward Gold Coast Down Syndrome Organization - Sunrise, Florida (USA)
Their organization is well aware of the special needs of your child and they are available to help you help your child. Their goal is simple, to enhance the lives of individuals with Down syndrome by helping them reach their full potential by providing family support, education and social activities.

Down Syndrome Association of Atlanta - Atlanta, Georgia (USA)
The Down Syndrome Association of Atlanta (DSAA) is a non-profit organization that provides education, awareness, support, and advocacy to individuals with Down syndrome and their families.  It serves the Metro-Atlanta area, which includes the following counties:  Fulton, Dekalb, Cobb, Clayton, Fayette, Coweta, Forsyth, Gwinnett, Cherokee, Rockdale, Henry, Newton, Troup, Douglas, Oconee, Spalding, Paulding, and Floyd.  Membership dues are paid on an annual basis and new families are free for the first year.  Membership is for all individuals living in a household.  In 2009 there are 500 families who are members.  DSAA welcomes anyone interested in Down syndrome to be a member (professionals, grandparents, extended family members, etc.).

Hawkeye Area Down Syndrome Association - Ainsworth, Iowa (USA)
Their goal is to provide education, support and advocacy to those individuals, their friends, families, and professionals in the Iowa City and Cedar Rapids area that are blessed by Down syndrome.

Treasure Valley Down Syndrome Assoc. - Meridian, Idaho (USA)
The mission of TVDSA is to improve the quality of life for people with Down Syndrome by promoting understanding and acceptance through support and education as well as participation in local and national events that raise awareness.

Champaign County Down Syndrome Network - Champaign, Illinois (USA)
The Down Syndrome Network operates as a not-for-profit organization serving families with members with Down Syndrome in Champaign County. The DSN offers support to families by providing current information for parents, professionals and the general public. We also reach out to new parents and try to raise awareness of Down Syndrome in our community.

Livingston Area Down Syndrome Society - Chatsworth, Illinois (USA)
LADSS was founded in 2003 by Mary & David Melvin. The impetus behind the group formation was the birth of their daughter Maggie in 2000 with translocation Down syndrome. Realizing there was lack of information available locally for those who are affected by Down syndrome they sought the group's formation. Together with like-minded families in the Livingston County, Illinois area, a basic support meeting was established. It is the mission of the Livingston Area Down Syndrome Society to be an advocate to empower persons with Down syndrome and their families. LADSS will be a local voice in central Illinois to create an atmosphere in which all people will recognize the value and dignity of those with Down syndrome.

Gigi’s Playhouse - Hoffman Estates, Illinois (USA)
What started as a local Playhouse in a suburb of Chicago has turned into an international phenomenon, spreading awareness and inspiration to everyone it touches. GiGi's Playhouses are Down syndrome educational and awareness centers that provide resources, specialized teaching, and support to individuals with Down syndrome and all the people that love them!

Heart of Illinois Down Syndrome Assoc. - Morton, Illinois (USA)
Improving the quality of life of persons with Down syndrome by providing support, advocacy, and educational opportunities to those individuals, their families, and community advocates.

Lincoln Land Down Syndrome Society - Springfield, Illinois (USA)
The Lincoln Land Down Syndrome Support Group was formed in approximately 1990 by a group of families from Springfield, Illinois, and the surrounding communities for the purpose of providing a support network for families having a member with Down syndrome. In September of 2001, Lincoln Land Down Syndrome Support Group, Inc., was incorporated in Illinois as a not-for-profit corporation and subsequently became a tax-exempt organization under Section 501(c)(3) of the Internal Revenue Code. In 2004, Lincoln Land Down Syndrome Society, Inc., adopted the assumed business name of the Lincoln Land Down Syndrome Society (LLDSS) and has continued to operate under that name since its adoption.

National Association for Down Syndrome - Wilmette, Illinois (USA)
NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Their pioneering efforts have made it easier for later generations of individuals with Down syndrome to be accepted by their families and communities, to develop their capabilities, and to work towards independence. Our mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life. We offer information, support, and advocacy.

Down Syndrome Association of Northeast Indiana - Ft. Wayne, Indiana (USA)
The mission of the Down Syndrome Association of Northeast Indiana is to enhance the lives of people affected by Down syndrome, advocate on their behalf, provide information and support to families and professionals, and promote acceptance and inclusion of people with Down syndrome in northeast Indiana.

Elkhart County Down Syndrome Support Group - Goshen, Indiana (USA)
Elkhart County Down Syndrome Support Group has about 50 families who have come together to support each other, educate ourselves, and to increase the awareness and acceptance of the community toward those with Down Syndrome.

Down Syndrome Family Support & Advocacy Group - Granger, Indiana (USA)
The Down Syndrome Family Support and Advocacy Group (DSFSAG) also referred to as Michiana Down Syndrome is a non-for profit 501c3 organization. Our Board is a 100% volunteer and we are proud to serve the St. Joseph, Marshall, LaPorte, Starke and Elkhart counties in Indiana and Cass, St. Joseph and Berrien counties in Michigan.

Down Syndrome Association of Northwest Indiana - Highland, Indiana (USA)
The Down Syndrome Association of Northwest Indiana, which was founded over 25 years ago, serves families of both children and adults with Down syndrome. Their vision is to foster understanding, acceptance and inclusion of persons with Down syndrome which will give them the greatest opportunities to realize their aspirations and enjoy independent and productive lives.

Dads Appreciating Down Syndrome - Indianapolis, Indiana (USA)
Dads Appreciating Down Syndrome, or D.A.D.S., is an organization of fathers of children who happen to have Down syndrome. You will find D.A.D.S. out in the community coaching kid’s sports teams, participating in children’s IEPs, volunteering at local Down syndrome fundraising events, and even sponsoring fundraising events of our own.

Down Syndrome Support Assoc. of Southern Indiana - New Albany, Indiana (USA)
The Down Syndrome Support Association of Southern Indiana (DSSASI) is committed to improving the quality of life for those with Down syndrome by providing information support to parents and increasing public understanding of Down syndrome through education, awareness and advocacy.

SMILE on Down Syndrome - Newburgh, Indiana (USA)
They have periodic gatherings and fundraiser's, and we invite anyone who has children with Down Syndrome, or has an interest in supporting those who care for them, Provides hope for the future to families within the tri-states of Indiana, Kentucky and Illinois who have a family member with Down Syndrome and provides an on-going parent-to-parent support system, making available a network of resources within the community at large, i.e. social, physical, emotional, spiritual and educational contacts to holistically meet the needs of the parents, siblings and persons with Down Syndrome and thus, inspiring the entire community to raise their level of respect of those with special needs

Down Syndrome Guild of Greater Kansas City - Shawnee Mission, Kansas (USA)
In 1984, a group of parents whose children had Down syndrome formed the DSG. They envisioned an organized network of resources. This vision has taken the DSG from an emerging grass roots parent movement to a premier nonprofit organization focused on advancements in education, inclusion and acceptance of people with Down syndrome. DSG operates in the greater Kansas City area, so people in rural areas have access to the same great materials as people in the city center.

Down Syndrome of South Central Kentucky - Bowling Green, Kentucky (USA)
DSACK provides emotional, educational and social support to families in need. We focus on current and future planning for families and their loved ones with Down syndrome, through seminars, group meetings, social activities, and informational materials.

Down Syndrome of Louisville, Inc. - Louisville, Kentucky (USA)
Their mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns. Specifically to enable the individual to reach their full potential.

Green River Area Down Syndrome Association - Owensboro, Kentucky (USA)
GRADSA's mission is to enable families enriched with the Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome.  We are located in Owensboro, Kentucky, and serve the counties of Daviess, Hancock, Henderson, McLean, Ohio, Union, and Webster.

Down Syndrome Awareness Group - Baton Rouge, Louisiana (USA)
DSAG publishes a newsletter and holds membership meetings. The organization also prepares and delivers “New Parent Packets” to early intervention programs and area hospitals.This packet,for new parents of babies born with Down syndrome, contains helpful and supportive information, as well as resources for the family.

Down Syndrome Association of Acadiana - Lafayette, Louisiana (USA)
DSAA provides families with a support network, sharing experiences from the birth of a child through the stages of education and adult-living within the community. Support resources include newsletters, new-parent information packets, parent-match services, community education, and special events.

Down Syndrome Assoc. of Greater New Orleans - New Orleans, Louisiana (USA)
Members of DSAGNO work with community leaders and government agencies to educate the community toward a greater understanding of the issues facing individuals with Down syndrome. DSAGNO does this by acting as a clearinghouse for current information, advocating in our schools for inclusion programs, working with other agencies to develop programs that benefit individuals with Down syndrome and sponsoring events that will raise awareness about Down syndrome and the ability of individuals with Down syndrome.

Massachusetts Down Syndrome Congress - Melrose, Massachusetts (USA)
To ensure individuals with Down syndrome in Massachusetts are valued, included, and given the opportunities to pursue fulfilling lives by providing information, networking opportunities, and advocacy for people with Down syndrome and their families, educators, health care professionals, and the community-at-large.

Down Syndrome Resource Group of Western Massachusetts - Springfield, Massachusetts (USA)
The Mission of the Down Syndrome Resource Group of Western Massachusetts is to discover, encourage, and embrace the potential of ALL individuals with Down syndrome. They accomplish this by supporting the individual, their families, caregivers, and communities through outreach, unity, resources, community involvement and education.

Chesapeake Down Syndrome Parent Group, Inc. - Baltimore, Maryland (USA)
The purpose of the Chesapeake Down Syndrome Parent Group, Inc. is to serve families of and persons with Down syndrome by providing info and support.

Down Syndrome Association of West Michigan - Grand Rapids, Michigan (USA)
Is a group of parents who have children with Down syndrome.  Have banded together to share knowledge with other families, and help and support new parents.  Also find it necessary to better educate ourselves, educational and medical professionals, and the public about Down syndrome, and to constantly remind everyone of all the things our children can do.

Down Syndrome Guild of Southeast Michigan - Royal Oak, Michigan (USA)
The DSGSEMI serves southeast Michigan, including Wayne, Oakland, Macomb, St. Clair, Livingston, Lapeer and Genesee counties. Our constituency is composed of over 250 individuals with Down syndrome of all ages, 900 family members and over 200 local professionals.

Families Exploring Down Syndrome - Sterling Heights, Michigan (USA)
More than 200 families strong, with members from throughout the metropolitan Detroit area and beyond. Events and programs to forge new friendships, learn, have fun, and appreciate life's blessings.

Down Syndrome Association of Minnesota - St. Paul, Minnesota (USA)
It is the mission of the Down Syndrome Association of Minnesota to provide information, resources and support to individuals with Down syndrome, their families and their communities.

Down Syndrome Group of the Ozarks - Springfield, Missouri (USA)
Their mission is to help individuals with Down syndrome become successful by providing sup-port and education to loving families, bringing awareness to early intervention services, promoting inclusive education, highlighting appropriate medical services, encouraging quality employment opportunities and advocating for community awareness and acceptance.

Down Syndrome Association of Greater St. Louis, Inc. - St. Louis, Missouri (USA)
The mission of the Down Syndrome Association of Greater St. Louis is to benefit the lives of people with Down syndrome and their families through individual and family supports, information, public awareness and advocacy.

Northeast Mississippi Down Syndrome Society - Saltillo, Mississippi (USA)
Our group was organized in 1992, by Gloria Huerta, to connect with other parents and people with Down syndrome. We are comprised of approximately 65 families, parents, siblings, and grandparents of people with Down syndrome. We act as individuals and as a group to lend support and share experience with one another regarding Down syndrome.

Down Syndrome Association for Families - Lincoln, Nebraska (USA)
The Down Syndrome Association for Families (DSAF) is a Lincoln non-profit organization that provides support for individuals with Down syndrome, their families, friends, educators, and professionals who share in their lives.

Omaha Down Syndrome Parents Network - Omaha, Nebraska (USA)
The ODSPN is a non-profit organization which serves families of children and adults with Down syndrome, and interested professionals in the Omaha, Nebraska and surrounding areas.

Northern New England Down Syndrome Congress - Concord, New Hampshire (USA)
The Mission Statement of the Northern New England Down Syndrome Congress (NNEDSC) is to help all people with Down syndrome live to their fullest potential and enhance their quality of life while bringing about awareness of Down syndrome.

KIIDS - Bellmawr, New Jersey (USA)
KIIDS is a non-profit organization based in Southern New Jersey. It was founded in 2003 by several mothers of young children with Down syndrome who met at a monthly playgroup.

Jersey Shore Down Syndrome Association - Brick, New Jersey (USA)
The Jersey Shore Down Syndrome Association was formed to be a network for all families of  children and adults with Down Syndrome.

Network 21 - E. Brunswick, New Jersey (USA)
Network21 is a parent-run network of families with Down syndrome in Central New Jersey. Connect and support parents, caregivers, and individuals with Down syndrome. Identify and share resources that can better provide for the needs of individuals with Down syndrome in our community.

Down Syndrome Association of Central New Jersey - Ewing, New Jersey (USA)
Down Syndrome Association of Central New Jersey is a non-profit parent support group, established to assist families of children and adults with Down syndrome.

21 Down a Down Syndrome Awareness Group - Northfield, New Jersey (USA)
Serving Atlantic, Cape May, and Southern Ocean Counties providing: Great Events, Excellent Speakers and a Supportive Environment

Down Syndrome Organization of S. Nevada - Las Vegas, Nevada (USA)
The Down Syndrome Organization of Southern Nevada is the largest organization in the region dedicated to supporting individuals and families with Down Syndrome.

Down Syndrome Aim High Resource Center, Inc. - Albany, New York (USA)
News and Notes is published six times a year by the Down Syndrome Aim High Resource Center (DSAHRC). The newsletter reports items of interest relating to Down syndrome and provides a forum for others.  We wish to bring together those interested in Down syndrome and attempt to create an optimistic outlook and attitude.

Down Syndrome Assoc. of the Hudson Vly - Hopewell Junction, New York (USA)
provides support to new parents, obtains and provides up to date info on Down syndrome to parents and others, increases community awareness of Down syndrome, enhance employment opportunities for people with Down syndrome and improves education for students with Down syndrome

Down Syndrome Connection of Long Island - Huntington, New York (USA)
The Down Syndrome Connection of Long Island aims to unite the local Down syndrome community so that we may share information, support, resources and experiences. 

Down Syndrome Parent Group of Western New York - Kenmore, New York (USA)
Provides support to persons with Down syndrome and their families. Makes available current information on Down syndrome. Provides information on educational programs and community services available for persons with Down syndrome and their families. Works with other support groups and organizations to improve the quality of life for persons with Down syndrome.

Flower City Down Syndrome Network - Rochester, New York (USA)
The mission of the Flower City Down Syndrome Network is to provide education, support, and opportunities to people who have Down syndrome, and their families, in the Greater Rochester area.

Down Syndrome Association of Charlotte - Charlotte, North Carolina (USA)
Our mission is to enhance the quality of life for all individuals with Ds by providing information and support to families, professionals and the community through educational and social activities.

Down Syndrome Network of Greater Greensboro - Greensboro, North Carolina (USA)
The Down Syndrome Network of Greater Greensboro is a group of parents who are committed to supporting one another, sharing important information, and advocating for the very best in school and community services for children with Down syndrome. This group, originally supported by a Parent Leadership Grant from the Family Support Network of Central Carolina, now uses funds raised from our annual Buddy Walk to provide a variety of services to families.

Triangle Down Syndrome Network - Raleigh, North Carolina (USA)
Triangle Down Syndrome Network exists to support and connect families of children with Down syndrome by organizing and promoting activities. TDSN is striving to make a presence in the community. Wants to ensure all people with Down syndrome have happy and productive lives. Located in central North Carolina, serving families in Wake, Durham and Orange and surrounding counties.

Designer Genes of North Dakota - Bismarck, North Dakota (USA)
Designer Genes strives to provide support, information, education and advocacy to families and persons with Down syndrome, as well as those supporting them, their friends and professionals.

The Down Syndrome Association of the Valley - Boardman, Ohio (USA)
Provides support, advocacy, resources, education and opportunity for those with Down syndrome and their families.

Down Syndrome Association of Greater Cincinnati - Cincinnati, Ohio (USA)
The DSAGC serves southwest Ohio, northern Kentucky and southeastern Indiana including Hamilton, Butler, Brown, Clermont, Warren, Boone, Campbell, Kenton and Dearborn counties. Constituency is composed of 1300 individuals with Down syndrome of all ages, 3,000 family members and over 300 local professionals. Providing families with support, inspiration and information, helping individuals with Down syndrome achieve their maximum potential. Believing in inclusion. Including individuals with Down syndrome in neighborhood schools, community activities and the business world benefits both the individual and their respective communities.

Down Syndrome Association of Central Ohio - Columbus, Ohio (USA)
The Down Syndrome Association of Central Ohio was established in 1984 with one purpose in mind, to accomplish our mission. That is: To foster a dynamic community in which individuals with Down syndrome are supported and encouraged while they fulfill their own individual lifetime potential.

Miami Valley Down Syndrome Association - Dayton, Ohio (USA)
MVDSA was established in 1977 as a non-profit organization of families and professionals working together to improve the quality of life for persons with Down syndrome and their families throughout the greater Miami Valley.

Upside of Downs/Greater Cleveland - Mentor, Ohio (USA)
The Up Side of Downs exists to provide support, education and advocacy for people with Down syndrome, their families and communities throughout Northeast Ohio.

Down Syndrome Association of Greater Toledo - Sylvania, Ohio (USA)
Promotes awareness, self-advocacy, self-determination, provides family support, education, resources, parenting education as well as supports Inclusion

Down Syndrome Assoc. of Central Oklahoma - Oklahoma City, Oklahoma (USA)
DSACO provides new and expectant parents with supports and up-to-date information about Down syndrome.

Down Syndrome Association of Tulsa, Inc. - Tulsa, Oklahoma (USA)
The Down Syndrome Association of Tulsa (DSAT) is a non-profit organization that exists to enhance the lives of individuals with Down syndrome, their families and caregivers. This is accomplished by providing support, encouragement, current information, education, opportunities for socialization and by promoting community recognition of the inherent dignity of all people with developmental disabilities.

Down Syndrome Association of Toronto - Toronto Ontario, (Canada)
A non-profit organization providing support and information to parents of children with Down syndrome, students and teachers. Our objective is to make information accessible to as many people as possible around the world.

Down's Syndrome Association - (UK)
Organization focusing solely on all aspects of living successfully with Down's syndrome. Since 1970, they have grown from being a local parent support group to a national charity with over 20,000 members, a national office in Teddington Middlesex, offices in Northern Ireland and Wales. Despite this, the organization is run by a total staff of only 33 (many of them part time), and a network of around 126 regional volunteer-led support groups.

Donegal Down Syndrome Association - Donegal, Ireland (UK)
The goal is to help people with Down Syndrome make their own futures as bright and independent as possible by providing them with education, support and friendship every step of the way.

Down Syndrome Ireland - Ireland (UK)
People experience many great things and also face many challenges throughout their lives. People with Down syndrome are no different, but may need a little help and support along the way.    We hope to provide parents, families, and the professionals that assist them with useful and up-to-date information on many topics related to Down syndrome

 

Dyslexia

Dyslexia
 
 
 
 

Fibromyalgia

Fibromyalgia

 

 

Hearing impairments

Hearing impairments

The American Speech-Language-Hearing Association (ASHA)
The national professional, scientific, and credentialing association for more than 173,070 audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students

 
 

KS - Klinefelter Syndrome

(KS) Klinefelter syndrome

Klinefelter Syndrome - KS Info and Support

 
 
 
 
 

Lyme disease - Tick-Borne Diseases (TBD)

Lyme Disease

Lyme Disease Association - Jackson, NJ (USA)
Lyme Disease Association's mission is promoting awareness of and controlling the spread of Lyme and other tick-borne diseases (TBD) and their complications through education and other means; raising and distributing funds for Lyme and tick-borne diseases (TBD) research, education and other related Lyme and TBD issues; assisting underpriviledged patients in connection with Lyme and other TBD

 
 

MS - Multiple Sclerosis

PDD - Pervasive Developmental Disorder

PWS - Prader-Willi Syndrome

Prader-Willi syndrome
 
 
 
 

PTSD - Post Traumatic Stress Disorder

SB - Spina Bifida

SCI - Spinal Cord Injury

TS - Tourette's Syndrome

(TS) Tourette's syndrome
Tourette Syndrome Association - Bayside, NY USA
Founded in 1972 in Bayside New York, the national Tourette Syndrome Association is the only national voluntary non-profit membership organization in this field.
Tourette Syndrome Association of Texas - Richmond, Texas USA
The Tourette Syndrome Association of Texas supports the medical, educational and social needs of Texans with Tourette's syndrome and their families.
 

Trisomy

Trisomy

Support Organization for Trisomy (SOFT) - SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.

 
 
 
 
 

Visual impairments

ADA - Americans Disability Act Law, Lawyers, Advocates for people with disabilities and social security benefits...

(ADA) Americans Disability Act

American Disabilities Act ADA Home Page - ada.gov - Information and Technical Assistance on the Americans with Disabilities Act - govt.

ADA Listings - Lits of ADA Lawyers, ADA Contractors as well as Medical Supply Shops.

Bazelon Center for Mental Health Law - is a nonprofit organization devoted to improving the lives of people with mental illnesses through changes in policy and law.

Paralyzed Veterans of America - Paralyzed Veterans of America supports efforts to enforce and extend laws and regulations that advance accessibility in housing - both publicly-funded and privately financed.

Iler & Iler - San Diego, California Personal Injury Attorneys If you or a loved one has been seriously injured in an automobile accident or as a result of the negligent actions of another, the attorney you hire to handle your case should be experienced, attentive and dedicated to protecting your best interests.

Thomas N. Stewart, II, Attorney at Law - ADA Lawyer - As a disabled person, you have the power to eliminate barriers by using the ADA for the benefit of yourself and others. Together, we can make Northern California a more accessible place. Northern California Area.

Levy Davis & Maher, LLP - ADA Lawyer - Represents individual employees in a range of employment-related issues. Their primary emphasis is litigating individual and class action employment discrimination cases and other types of unlawful employment practices such as sexual and racial harassment, overtime violations and medical leave disputes. Our experienced legal team can also assist employees who are seeking representation in severance and contract negotiations. Located in New York City.

California Law - California Law Information site

Binder & Binder - Social Security Disability Advocates. With locations nationwide, we serve clients' Social Security Disability and Supplemental Security Income needs in all 50 states, Puerto Rico, the Virgin Islands and all U.S. territories.

Myler Disability - Having issues getting the Social Security benefits you need?

Social Security - The Official Website of the U.S. Social Security Administration. (Benefits for People with Disabilities)

Social Security Disability Help - provides information and assistance to individuals who are interested in filing a disability claim for Social Security Disability Insurance or Supplemental Security Income benefits.

National Council for Aging Care - National Council for Aging Care's guide for Military Veteran Benefit Options: The U.S. is seeing a growing number of seniors who are also armed services veterans. The current median age for living Americans who served in the Korean War is 69

Veteran Benefits - Is defined by the U.S. Department of Veterans Affairs (VA) typically refers to either compensation for a disability that is a result of combat injury or a pension for service personnel over the age of 65

Medical Discounts, Inc. - Provides cash prices for people paying cash with no health insurance or high deductibles. Everyone qualifies! Free Prescription Medicine is Available to all U.S. citizens who qualify.

 
 
 
 
 
 
 
 

Movies

A Is for Autism (1992 documentary short)
Based on sketches or animated sequences by people with autistic syndromes, this film shocks with the beauty of the haunting images, opening a little window to the alternative perception present in autism, bare though of any shallow sentimentalism. The content is valid medically, and the images are of the most beautiful animated icons in films. "my first drawing was of street lights" and by that first line you hear, you know you enter a room where the natural laws don't apply, where a caress is painful, and a lullaby is a splintering scream. It is of the rare cases of films, succeeding in presenting correctly and almost fully a medical subject and still be food for the soul for a film lover.

Attention Deficit Disorder Man (2005 video)
Attention Deficit Disorder Man, he puts the 'action' back in distraction.

Autism in Our World (2008 documentary short)
Autism is a developmental disorder that affects the brain's functioning. It affects the individual's social skills and cognitive knowledge. The film raises awareness of the disorder and the controversy concerning autism on the rise, its possible causes, and treatments. Featuring an autistic child, the journey into Cole Horne's world allows us to experience autism first-hand and how the daily challenges become a way of life for him and his family.

Autism: The Musical (2007 documentary) aka The Miracle Project (USA) (working title)
Follows five autistic children as they work together to create and perform a live musical production. Additional... (Warning contains spoilers)

A Mothers Courage: Talking Back to Autism (2009 documentary) - this is a compassionate, at times heart-wrenching, and informative documentary that also offers a glimmer of hope and is a realistic counterpoint to Hollywood films like Rain Man. There is some unnecessary padding here, and the film could have been trimmed and still make its points effectively.

Baby Let Your Hair Hang Down (2009 documentary)
Georgia Van Cuylenburg is a young Australian Actress and Comedian who currently lives in Hollywood California. Her life goal has always been to change the world - one smile at a time. In 2007 Georgia suddenly lost all of her hair and was diagnosed with Alopecia Areata. For the first time in her life she found it hard to smile. Rather than hiding away, choosing an easier career and giving in to her disorder Georgia decided to go loud and proud. She allowed cameras into her daily life to experience what it is like to be a woman, especially one who relies on her appearance to make a living, and to loose one's hair. She shared her tears, her pain and her triumphs. And she put them all together into one film to show the world how she learned that life is not about the hair on your head, it is about the lessons you learn the friends you find and the difference you can make. Her triumph through this movie is a message for millions of people around the world suffering from this disease, adults and children alike.
Summary written by Producer

Beyond Limits (2010 documentary)
At 19,340 feet, Mount Kilimanjaro in Tanzania, Africa is the tallest free-standing mountain in the world and a daunting climb for any person to attempt. Born with cerebral palsy, Bonner Paddock disregards conventional limits in hopes to defy his condition and inspire others. Despite a weak lower body, spastic leg muscles, zero sense of balance and lack of climbing experience, Bonner is fully committed to challenging the impossible task of climbing the mountain. His mission is not only of a physical nature, but one of inspiration. He hopes to help children living with disabilities overcome their own obstacles. All the money raised for Bonner's climb will go towards just that: the first Early Learning Center to serve children with and without disabilities in his own backyard in Orange County, California. Not a mountain climber by his own admission and with only a few months of training under his belt, Bonner soon learns there is no preparation for what he finds on the mountain. Over 8 days, 64 miles, shear cliffs, sub-zero temperatures, and ever-thinning oxygen, Bonner is forced to confront what most would consider catastrophic. Perseverance and the sheer will to succeed overshadow any doubts that enter his mind; the summit Kilimanjaro and silence his critics, Bonner will go beyond limits. Academy Award Nominee Michael Clarke Duncan boldly narrates this stirring true story documentary.
Summary written by Anonymous

Headstrong: Inside the Hidden World of Dyslexia & Attention Deficit Hyperactivity Disorder (2007 documentary short)
Headstrong follows six very different adults into the hidden world of dyslexia and attention deficit hyperactivity disorder (ADHD). Discover the untold story of an Alabama civil rights hero who won an historic dyslexia discrimination law suit; share a teenager's struggle in a California public school as he discloses his ADHD for the first time; and enter the remarkable life of a 44 year-old dyslexic single mother on welfare as she strives to graduate from a top university. Our narrator, Ben, is on his own journey to understand the dyslexia that has driven and frustrated him throughout his life. He takes us from Northern California to the deep South in search of the people and insights that will connect this unseen community.

Hemispheres: A Documentary on Cerebral Palsy (2009 documentary)
An interlaced three part documentary focusing on the state of cerebral palsy in today's world, possible cures for cerebral palsy and the inspirational focus of the first pilots with cerebral palsy to fly solo around the world.

St. Elsewhere: Down's Syndrome (1982 TV episode)
Dr. Cavanero tells a couple that their newborn baby will have Down's Syndrome. Dr. Beale tries to get inside the head of the bomber. Dr. Westphall shows members of the boards around the hospital. Fiscus gets trapped in the elevator with Cathy Martin.

Temple Grandin (2010 TV movie)
Biopic of Temple Grandin, an autistic woman who overcame the limitations imposed on her by her condition to become an expert in the field of animal husbandry. She developed an interest in cattle early in life while spending time at her Aunt and Uncle's ranch. She did not speak until age four and had difficulty right through high school, mostly in dealing with people. Her mother was very supportive as were some of her teachers. She is noted for creating her 'hug box', widely recognized today as a way of relieving stress and her humane design for the treatment of cattle in processing plants, even winning an award from PETA. Today, she is a professor at Colorado State University.

 
 
 









Desabled
Defined:
Stopped or inoperable

I am
neither
inoperable
nor am I
Stoppable!